Impact of Disparities in Food Security on Glycemic Control and Health Care Utilization Among Youth and Young Adults with Diabetes Save

Date Added
March 19th, 2018
PRO Number
Pro00075894
Researcher
Angela Liese
Keywords
Adolescents, Diabetes, Environmental Factors, Ethnicity and Disease, Nutrition
Summary

Many youth and young adults (YYAs) with type 1 diabetes (T1D) and type 2 diabetes (T2D), particularly those of minority race/ethnicity, do not achieve optimal glycemic control and household food insecurity (HFI) may be a key barrier. HFI is the limited or uncertain availability of nutritionally adequate and safe foods. The SEARCH Food Security (SFS) cohort study is designed as an ancillary study to the ongoing NIH/NIDDK-funded SEARCH for Diabetes in Youth 4 Cohort study. The aims of the SFS study are to (1) Initiate a food insecurity cohort study of 1,187 YYAs aged 15-35 years (53% minority) with T1D and T2D by adding two data collection time points to the ongoing SEARCH 4 study in three of the five SEARCH sites, including South Carolina, Colorado and Washington; (2) Evaluate how HFI influences changes in glycemic control in YYAs with T1D and T2D; (3) Identify the pathways through which food insecurity may act; and (4) Evaluate the influence of HFI on changes in health care utilization and medical and non-medical health care costs in YYAs with T1D and T2D.

Institution
Greenville
Recruitment Contact
Jessica Stucker
803-777-1961
jstucker@mailbox.sc.edu

Community Talking Circles: Qualitative Research to Document Patient Needs Save

Date Added
November 30th, 2017
PRO Number
Pro00068865
Researcher
Philip Smeltzer
Keywords
Education, Environmental Factors, Healthy Volunteer Studies, Language, Minorities, Non-interventional, Writing
Summary

Focus groups or talking circles are formed in community neighborhoods to facilitate input on common patient experiences. Insights on patient perceptions related to physician office visits and after visit self care are obtained in groups of 8-12 participants.

Institution
MUSC
Recruitment Contact
Philip Smeltzer
843-792-6637
smeltzerp@musc.edu

Pilot study of mobile app monitoring to prevent heat-related symptoms among Hispanic farmworkers Save

Date Added
September 20th, 2017
PRO Number
Pro00069288
Researcher
John Luque
Keywords
Education, Environmental Factors, Healthy Volunteer Studies
Summary

The proposed research will test and evaluate a Spanish-language, heat-related
illness (HRI) prevention, OSHA mobile application (app) intervention (Heat Safety Tool) in South Carolina, with the long-term goal of reducing HRI among migrant and seasonal farmworkers.

Institution
MUSC
Recruitment Contact
Caroline Davila
843-876-2248
davilac@musc.edu

Empowering Rural Teens through Photovoice to Influence the Health of their Community Save

Date Added
July 28th, 2017
PRO Number
Pro00067937
Researcher
Michelle Nichols

Silhouette
Keywords
Adolescents, Disease Prevention, Environmental Factors, Ethnicity and Disease, Exercise, Minorities, Non-interventional, Nutrition, Obesity
Summary

This study will recruit adolescents who are enrolled in a Teen Health Careers Program to participate in a community-engaged study. This study will seek to understand the barriers and facilitators to physical activity and nutritious foods throughout their daily lives. Adolescents will use take digital images to capture aspects of their daily lives using photography.

Institution
MUSC
Recruitment Contact
Michelle Nichols
(843) 792-1802
nicholmg@musc.edu

Evaluation of the CytoRADx SystemTM as a Biodosimeter for Special Human Populations Save

Date Added
July 14th, 2017
PRO Number
Pro00067066
Researcher
Gary Headden

Silhouette
Keywords
Blood Disorders, Children's Health, Environmental Factors, HIV / AIDS, Non-interventional, Pediatrics
Summary

This is a study to develop a test for radiation exposure in the event of a nuclear event such as the detonation of a nuclear device or widespread radiation exposure. We will collect blood samples from a variety of different types of human subjects whose current medical status could possibly have an effect on the results of the test, such as trauma, burns, infections or a damaged immune system or young children. The goal is to ensure that these conditions do not affect the results of the test.

Institution
MUSC
Recruitment Contact
Robert Houck
(843) 792-3576
houckr@musc.edu

Establishing a Baseline Health Assessment in Economically Distressed Communities of North Charleston, SC Save

Date Added
November 14th, 2016
PRO Number
Pro00056615
Researcher
Michelle Nichols

Silhouette
Keywords
Environmental Factors, Healthy Volunteer Studies
Summary

Health outcomes resulting from chronic exposures to port activities include increased cancer, diabetes, cardiovascular disease, and respiratory disease. The proposed research is significant because it will allow adverse health effects of anticipated air pollutants resulting from increased diesel emissions associated with port activities to be assessed. The research team has developed with community input a health survey from existing, validated survey instruments to self-report health outcomes including cancer, diabetes, cardiovascular and lung diseases.

Institution
MUSC
Recruitment Contact
Michelle Nichols
843-792-1802
nicholmg@musc.edu

Alpha-1 Foundation Clinical Resource Center (CRC) Research Registry Save

Date Added
November 18th, 2014
PRO Number
Pro00026071
Researcher
Charlie Strange

Silhouette
Keywords
Asthma, Breathing, Environmental Factors, Genetics, Liver, Lung, Pulmonary, Rare Diseases, Shortness of Breath
Summary

The purpose of the Alpha-1 Foundation Clinical Resource Center (CRC) Research Registry is to collect and store medical information from individuals with alpha-1 antitrypsin deficiency (AATD or Alpha-1) or individuals that carry a deficient Alpha-1 gene. The Registry will collect medical information on your disease and diagnosis. This information will include family history, lung and liver symptoms, and exposure to cigarette smoke, dusts and fumes.The goal of this project is to obtain and share information that defines the natural history of alpha-1 antitrypsin deficiency. Biological samples from either blood or tissue may be collected and stored as part of this research. This project will assemble a library of these biological samples, some of which will be saved at MUSC.

Institution
MUSC
Recruitment Contact
Eryn Varano
877-886-2383
alphaone@musc.edu

A Pilot Study Evaluating Racial Disparity, Environmental Toxin Exposure and Regulation of Anti-Inflammatory Mediators as Risk Factors for Endometrial Carcinogenesis Save

Date Added
May 22nd, 2014
PRO Number
Pro00030149
Researcher
Whitney Graybill

Silhouette
Keywords
Cancer, Environmental Factors
Summary

The purpose of this study is to determine if environmental toxin exposure differs in African American women as compared to White women with endometrial cancer and to evaluate the relationship between demographic variables and toxin level.

Institution
MUSC
Recruitment Contact
Tamara Jenkins
843-792-6992
saundert@musc.edu

Structured Life Reviews in Adults with Sickle Cell Disease Save

Date Added
March 14th, 2014
PRO Number
Pro00032118
Researcher
Shannon Hudson

Silhouette
Keywords
Blood Disorders, Environmental Factors, Non-interventional
Summary

Structured life reviews are a series of interviews during which the interviewer asks questions about a person's life experiences from birth to the present. During this study, we will conduct structured life reviews with adults with sickle cell disease. We will ask questions about life transitions and health care utilization.

Institution
MUSC
Recruitment Contact
Shannon Phillips
843-792-9379
hudsonsm@musc.edu

The Core Center for Clinical Research, Improving Minority Health in Rheumatic Diseases Save

Date Added
January 15th, 2013
PRO Number
Pro00021985
Researcher
Gary Gilkeson

Silhouette
Keywords
Autoimmune disease, Environmental Factors, Ethnicity and Disease, Genetics, Healthy Volunteer Studies, Lupus, Minorities, Rare Diseases, Scleroderma
Summary

Systemic lupus erythematosus (lupus; SLE) and Systemic Sclerosis (scleroderma; SSc) are relatively rare rheumatic diseases that disproportionately impact the African American community, and particularly African American women. The causes of lupus and scleroderma are unknown, but thought to include both genetic and environmental factors. We are enrolling lupus and scleroderma patients, and healthy control subjects. This is not a drug study. The purpose of this study is to better understand the factors that predispose people to develop lupus and scleroderma. Information about medical, social and family history, medications, physical exam findings, and laboratory tests will be collected for analysis. This study will involve approximately 1360 volunteers.

Institution
MUSC
Recruitment Contact
Stephanie Slan
843-792-8997
slans@musc.edu

Change_preferences

-- OR --

Create_login