EXAMINING BARRIERS TO EVIDENCE-BASED TREATMENTS FOR DISRUPTIVE BEHAVIOR IN YOUNG CHILDREN WITH ASD Save

Date Added
December 10th, 2019
PRO Number
Pro00095184
Researcher
Rosmary Ros-demarize

List of Studies

Silhouette
Keywords
Autism
Summary

The current study investigates how available parenting interventions are for families of young children with ASD and how parenting practices influence participation with these interventions.

Institution
MUSC
Recruitment Contact
Rosmary Ros-Demarize
843-876-1255
rosr@musc.edu

PARENTAL ATTITUDES SURROUNDING DIAGNOSIS DISCLOSURE FOR YOUTH WITH AUTISM SPECTRUM DISORDER AND OPENNESS IN A PSYCHOEDUCATIONAL INTERVENTION Save

Date Added
November 27th, 2019
PRO Number
Pro00094917
Researcher
Rosmary Ros-demarize

List of Studies

Silhouette
Keywords
Autism
Summary

The current study will investigate the experiences of parents with children with ASD in disclosing diagnosis and their opinions on a brief intervention to aid families with this process.

Institution
MUSC
Recruitment Contact
Rosmary Ros-Demarize
843-876-1255
rosr@musc.edu

ASSESSING ATTITUDES AND IMPACTS OF DIAGNOSIS DISCLOSURE FOR INDEPENDENT ADULTS WITH AUTISM SPECTRUM DISORDER Save

Date Added
November 27th, 2019
PRO Number
Pro00094892
Researcher
Rosmary Ros-demarize

List of Studies

Silhouette
Keywords
Autism
Summary

The current study will investigate the experiences of adults with ASD in learning about diagnosis and their opinions on a brief intervention to aid families with this process.

Institution
MUSC
Recruitment Contact
Rosmary Ros-Demarize
843-876-1255
rosr@musc.edu

DEVELOPMENT OF AN AUTISM SPECTRUM DISORDER SCREENING TEST BASED UPON METABOLIC PROFILING OF FRESH BLOOD SAMPLES Save

Date Added
October 2nd, 2018
PRO Number
Pro00080964
Researcher
Laura Carpenter

List of Studies


Profiles_link
Keywords
Autism, Genetics
Summary

No laboratory based diagnostic test for Autism Spectrum Disorder (ASD) currently exists. The goal of this study is to develop blood test for ASD using metabolic profiling, and to then evaluate this test using a large sample of three to five year old children with and without ASD. Having a reliable blood test for ASD will allow for rapid identification of young children who may have ASD, and will allow these children to get expedited access to treatments.

Institution
MUSC
Recruitment Contact
Anna Rhea
(843)876-0504
rheaa@musc.edu

Odor Disturbances: Clinical Care Registry Save

Date Added
September 26th, 2018
PRO Number
Pro00080333
Researcher
Thomas Uhde

List of Studies


Profiles_link
Keywords
ADD/ADHD, Adolescents, Aging, Allergy, Alzheimers, Anxiety, Asthma, Autism, Autoimmune disease, Central Nervous System, Chronic Fatigue, Depression, Environmental Factors, Fibromyalgia, Inflammation, Memory Loss, Nervous System, Parkinsons, Psychiatry
Summary

Candidates for this study may or may not report disturbances in odor perception as their primary reason for seeking treatment at MUSC. This study is designed to collect long term, observational data from patients who are being treated with routine clinical care in health clinics at MUSC. Data from clinical questionnaires will be de-identified and stored in a database.

Institution
MUSC
Recruitment Contact
Richard Simmons
843-792-7439
simmr@musc.edu

Trials and ReseArch NetworkS FOR More South Carolina (TRANSFORM SC) Child Health Recruitment Registry Save

Date Added
June 9th, 2017
PRO Number
Pro00063569
Researcher
Andrew Atz

List of Studies


Profiles_link
Keywords
Asthma, Autism, Children's Health, Diabetes, Obesity
Summary

The TRANSFORM network is focused on improving child health outcomes in SC through research on conditions of highest priority for future generations. These include conditions like asthma, autism, diabetes, obesity and early childhood outcomes. To accelerate research study recruitment activities for future projects that TRANSFORM sites may participate in, the TRANSFORM network sites will create a research recruitment registry of families interested in volunteering for research. Participants will enter their own as well as their child(ren)'s information into the electronic registry which can be used to identify people to contact for future studies.

Institution
MUSC
Recruitment Contact
Sarah Newman-Norlund
803-216-3377
Sarah.Newman-Norlund@uscmed.sc.edu

Language Development in Teens and Young Adults with Fragile X Syndrome or Autism Save

Date Added
January 25th, 2012
PRO Number
Pro00014212
Researcher
Jessica Klusek

List of Studies

Keywords
Adolescents, Autism, Healthy Volunteer Studies, Language
Summary

We are recruiting mothers of children with typical development, autism, or fragile X syndrome.

This study focuses on parental experiences and normal individual differences that may influence child language development. The broader goal of the study is to understand which family experiences support language development in children who have neurodevelopmental disabilities, such as autism. We are recruiting families who have children who are typically developing, have autism, or have fragile X syndrome.

Institution
USC
Recruitment Contact
Jessica Klusek
803 777 5676
klusek@mailbox.sc.edu

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