This research study is being conducted to gather information about patients with inflammatory bowel disease (IBD) to better understand their knowledge and preferences about self-help resources and learn how to help patients better manage their disease. Participation in this study will involve signing a research consent form, completing questionnaires, and the opportunity to participate in self-help resources. Some participants may be offered the opportunity to participate in a virtual focus group, as well. Participation in the study will last approximately 3 months.
The goal of this study is to collect health information from adults with IBD to better understand the disease and ultimately improve care for participants and other adults living with IBD. Participation in this study is voluntary. If a subject agrees to be in this study, we will collect information electronically (through a web-based platform called IBD Qorus) from the subject and the subject's IBD health care provider about their IBD health information.
Approximately 50 sites across the U.S. are currently participated in this study. The study is sponsored by the non-profit Crohn's and Colitis Foundation.
With the collected medical data, the study will focus on the strategy of identifying goals (or targets) of IBD care, developing a strategy to reach these goals, and then continuously evaluating progress of achieving these targets and modifying the treatment plan.
The purpose of this study is to evaluate the findings of Abdominal Ultrasound (AU) and to determine the effectiveness and safety in diagnosing Inflammatory Bowel Disease (IBD) in children. An AU provides a cost-effective, radiation-free, noninvasive method while a colonoscopy, endoscopy, and biopsy are invasive procedures. A secondary aim of the study is to compare the AU findings with blood markers and advanced imaging, when available. The department of Radiology will be conducting this study at the Shaw Jenkins Children's Hospital and MUSC Children's Health R. Keith Summey Medical Pavilion.