Evaluating the Teleconsent Software and Workflow

Date Added
April 8th, 2021
PRO Number
Pro00103918
Researcher
Jihad Obeid

List of Studies


Keywords
Education, Healthy Volunteer Studies
Summary

During the COVID-19 pandemic, in person informed consent for research has become a barrier for certain low risk research studies, especially with the added exposure risk in vulnerable populations. This study will evaluate three remote teleconsent platforms by comparing remote paper consenting through Zoom, electronic consenting through REDCap and interactive consenting through Doxy.me to each other to evaluate how comfortable each participate is in working with these consenting platforms.

Institution
MUSC
Recruitment Contact
Sarvesh Rajesh Sawant
864-986-2994
sarvess@g.clemson.edu

Food Allergy Symptom Self-management with Technology (FASST) for Caregivers: An mHealth Intervention to Address Psychosocial Outcomes in Caregivers of Children with Newly Diagnosed Food Allergy (Phase 2)

Date Added
July 21st, 2020
PRO Number
Pro00100789
Researcher
Brantlee Broome

List of Studies


Keywords
Allergy, Autoimmune disease, Education, Mental Health
Summary

The purpose of this study is to evaluate use of a mobile application (also commonly referred to as an app) designed to support caregivers of children with newly diagnosed food allergy. This study has 2 phases. In Phase 1, the researchers obtained feedback regarding use of mobile apps from caregivers who have been managing their child's food allergy for one year or more. The researchers then used this feedback to build a mobile app for caregivers of children with newly diagnosed food allergy. In Phase 2, the researchers will evaluate the mobile app during a 4-week evaluation period with a group of caregivers of children newly diagnosed with food allergy. The data obtained from this study will hopefully benefit caregivers of children with newly diagnosed food allergy.

Institution
MUSC
Recruitment Contact
Margaret Prentice
843-735-9215
prenticm@musc.edu

Kidney Paired Donation Video Education Trial

Date Added
April 25th, 2018
PRO Number
Pro00075387
Researcher
Derek DuBay

List of Studies


Keywords
Education, Kidney, Transplant
Summary

Live donor kidney transplantation (LDKT) offers the most optimal survival and quality
of life benefit for those with late-stage chronic kidney disease. However, one-third of potential donors who volunteer to undergo evaluation on behalf of an intended recipient are blood-type or cross-match incompatibility. Kidney paired donation (KPD) was developed as a strategy to provide these incompatible donor-recipient pairs with an innovative opportunity for LDKT, yet its uptake by potential donors and their intended LDKT recipients is not optimal. In this study, we will evaluate the
effectiveness of a targeted video intervention designed to address common concerns
about KPD on the knowledge of KPD risks and benefits, KPD self-efficacy, and KPD
concerns in incompatible potential donors and their intended recipients.

Institution
MUSC
Recruitment Contact
Thomas Morinelli
843-792-5405
morinelt@musc.edu