PHOENIX: Development of a Spinal Cord Injury Peer-Supported Self-Management Intervention Save

Date Added
August 8th, 2018
PRO Number
Pro00071526
Researcher
Susan Newman

Silhouette
Keywords
Rehabilitation Studies, Spinal Cord
Summary

The purpose of this research study is to determine if it is helpful to provide a peer-supported, health promotion intervention, known as PHOENIX, for people with spinal cord injury using telehealth. An additional purpose of this research is to test if PHOENIX has an effect on community participation, quality of life, and prevention of secondary conditions, such as pressure injuries and urinary tract infections, in people with spinal cord injury. Participants in PHOENIX will complete a 16-week spinal cord injury self-management program using iPads, provided by the study, to access online educational content and participate in video visits (weekly for the first 8 weeks, then every other week for the last 8 weeks) with a peer mentor who also has a spinal cord injury. There are 12 video visits in total and each visit will take about 1 hour. Participants will also be asked to complete a series of questionnaires several times while enrolled in the study. Participants will also be asked to take part in a group discussion or an interview to provide feedback on the PHOENIX program at the end of the study.

Institution
MUSC
Recruitment Contact
Lisa Heidelberg
843-792-7309
heidelbe@musc.edu

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