This study tests an intervention to help children with sickle cell disease ages 0-7 years and their families. The intervention is available on a smartphone or tablet, and includes an app for keeping track of symptoms and messaging with a health care provider. For more information, please contact Shannon at 843-792-9379.
The purpose of this study is to find out whether a web-based intervention using a mobile device over a 12-week period is helpful in managing symptoms of Sickle Cell Disease in children, such as pain and fatigue and quality of life. For more information, please contact Shannon at 843-792-9379.
Structured life reviews are a series of interviews during which the interviewer asks questions about a person's life experiences from birth to the present. During this study, we will conduct structured life reviews with adults with sickle cell disease. We will ask questions about life transitions and health care utilization.