A Family-Centered Self-Management Program for Young Children with Sickle Cell Disease: Phase I Save

Date Added
March 22nd, 2016
PRO Number
Pro00053576
Researcher
Shannon Hudson
Keywords
Blood Disorders, Children's Health, Infant, Pediatrics
Summary

This study tests an intervention to help children with sickle cell disease ages 0-7 years and their families. The intervention is available on a smartphone or tablet, and includes an app for keeping track of symptoms and text messaging with a health care provider. Participants are needed to briefly review the intervention and provide feedback.

Institution
MUSC
Recruitment Contact
Shannon Phillips
843-792-9379
phillipss@musc.edu

Structured Life Reviews in Adults with Sickle Cell Disease Save

Date Added
March 14th, 2014
PRO Number
Pro00032118
Researcher
Shannon Hudson
Keywords
Blood Disorders, Environmental Factors, Non-interventional
Summary

Structured life reviews are a series of interviews during which the interviewer asks questions about a person's life experiences from birth to the present. During this study, we will conduct structured life reviews with adults with sickle cell disease. We will ask questions about life transitions and health care utilization.

Institution
MUSC
Recruitment Contact
Shannon Phillips
843-792-9379
hudsonsm@musc.edu

Change_preferences

-- OR --

Create_login