This research will develop and test a nutrition-focused mobile-support program for head and neck cancer patients and their caregivers at the end of treatment.
Phase I: To guide system development, we will conduct interviews with 15 individuals with head and neck cancer and their caregivers to understand the nutritional challenges faced at the end of treatment. We will also recruit 35 oncology dietitians to complete online surveys to identify key caregiver nutritional support tasks and caregiver demands.
Phase II: After system development, we will recruit 33 head and neck cancer patients and their main supporters to pretest our nutrition support system. Participants will be asked to complete two surveys and a one-time clinic session. The clinic session will include information and resources about symptoms and concerns and after the visit, the program will provide follow-up resources and support online for one month. Lastly, we we will conduct individual/small group interviews with 10 head and neck health care providers to evaluate feasibility and recommendations for future system development.
The information from this study may help us to improve supportive care programs in the future to help others as they complete head and neck cancer treatment.
This research will develop and test a specialized survivorship care planning intervention for head and neck cancer patients and their caregivers at the end of treatment. In the first phase of this research, we will conduct interviews with individuals with head and neck cancer and their caregivers and health care providers to understand the challenges faced at the end of treatment. In the second phase of this research, we will conduct a randomized controlled trial to test the feasibility and impact of a survivorship care planning intervention on patient and caregiver psychosocial and care outcomes (N=80 dyads). Head and neck cancer patients and their primary caregivers will enroll in the study who are approaching the end of treatment or have completed treatment within the past 18 months and be randomized to the intervention group or usual care. Participants in the intervention group will participate in a clinic session followed by one telephone call. Participants in the usual care group will receive survivorship materials in person or by mail. All participants will complete 2 interviews. Information gained from this study will help researchers understand the best ways to help families prepare for life after treatment for head and neck cancer.