Retrospective and Prospective Data Collection of Maternal, Fetal, and Neonatal Variables from Patients Referred to Fetal Heart Society Participant Centers with a Maternal or Fetal Abnormality Aff ecting the Fetal Cardiovascular System. (Fetal Heart Society Collaborative Research Database Project) FHS Protocol Number 001 Save

Date Added
April 18th, 2016
PRO Number
Pro00054603
Researcher
Carolyn Taylor
Keywords
Children's Health, Pregnancy
Summary

In the past, many patients have been referred to a FHS participant site for evaluation and treatment of maternal or fetal abnormalities. Until recently, most studies regarding maternal or fetal disease have been single-center studies. Many maternal and fetal abnormalities are exceedingly rare. Due to the relative rarity of many forms of fetal congenital malformations, little collective short- and long-term data on outcomes exist. The Fetal Heart Society aims to collect data on a large cohort of patients and improve best clinical practice and improve outcomes for rare diseases.

Institution
MUSC
Recruitment Contact
Kalyan Chundru
843-792-1213
choudhar@musc.edu

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